Opsoclonus Myoclonus Syndrome (OMS) is a rare auto-immune disorder that attacks the central nervous system primarily in toddlers. Left undiagnosed, the child will lose the capacity to walk, talk, or do most tasks that toddlers can achieve. While there is no known cure, researchers are zeroing in on treatments that can consistently stabilize the disease. This site is created to enhance awareness of the disease and educate families who have a child suffering from OMS.
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“Alexa and her friends did not choose OMS - it chose them. But we have chosen to make a difference in battling OMS and in efforts to find a cure. Please join us in this cause.”
Opsoclonus is defined as an unusual disorder of eye movement. This is where the eyes involuntarily dart around. Myoclonus is defined as short muscle jerks. Ataxia indicates lack of coordination. Currently, only less than a handful of doctors are looking into the cause and treatment of OMS. To date, however, there is no known definitive cause, and thus no known decisive cure.
As parents of a child with OMS, we are trying every day to help spread awareness for this disease. OMS knowledge is crucial so that doctors will not delay diagnosis and can limit brain injury. Please join us in bringing attention to this disease and help us in supporting those doctors doing research for a cure.
The map below shows OMS children featured on our web site. To read their stories, click on the OMS kids tab or the User Locations tab.